EpiNet – Worldwide Registry
Web-based patient registry for clinicians and researchers, allowing efficient data collection for improved management of the global epileptic population.
- Dashboard view for quick overview of a Clinician’s assigned patients
- Detailed patient summary
- Multiple sophisticated data collection forms
- Data entry approval system with levels of accreditation
- Multiple registries for handling different patient sets
- Automated scheduled follow up reminders
- Condition comparison charting
- Data extract
- Reporting on key data
- Encourages optimal management of the patient
- Provides a central repository, accessible worldwide
- Created in partnership with the Auckland District Health Board
A registry for capturing data on patient episodes triggered by a medical condition; enables tracking and monitoring of outcomes based on approved treatments provided.
Benefits of EpiNet
- Improve clinical care of patients
- Dynamic clinical support, designed to capture relevant clinical data only
- Control access and entry of data by role:
- Read-only access
- Research Assistant – requires approval from investigator
- Investigator
- Primary Investigator (owner) for a specific patient
- Anonymised administrator access
- The investigator who enters the information (the primary investigator) determines who can access the record
- Low-cost, collaborative approach to research
- Accessible from anywhere in the world
- Information on patients with specific syndromes allowing for focused studies
- Identification of relatively large groups of patients with uncommon or rare syndromes, so that research in these patient groups can be facilitated
- Data collection tool, not intended for use as a clinical trial
